post doc apt after cycle 6

Well, some good news, some bad news, some not sure what to think.

 

As soon as I sent the last update out, the chemo head and hangover hit Jeff pretty hard. We went to church on that Saturday night and then to fireworks after. We got home close to midnight that Saturday night. Jeff spent midnight Sat night until 900 WEDNESDAY morning in his jammies (other than a few hours on Monday when his family was here for a picnic) and either on the couch, in bed or on the lounge chair on the porch.  Turns out it wasn't the lack of fluids last time like we had hoped, but the cumulative effect of the chemo in his system that made the after effects so horrible. He still felt somewhat crummy on Wed but as the day went on, the feelings started to get better.

 

It is weird to me how fast things leave when they do. He was improving and felt okay to go to his cousin's funeral- although still badly enough that I drove to get there. But, just in the hours that we were there, he felt good enough to drive home and then go into work after. On the other hand, it doesn't take long to hit him either.

 

He is still saying this weekend yet that he at times feels like his head has stuff floating around in it that doesn't belong there. But he is able to work at work and here at the house and feel 'ok' to do it.

 

I thought we were done with our trips to Meadville for awhile now. Not so. He has to have another CT scan on the 21st. Then we go back on the 25th to find out what is up with that. If all is okay, we will talk about the "R" word. Dr. H left it slip then said he doesn't like to use it until he knows for sure. We also questioned something he had said before. Then he explained to us that he doesnt' like to talk about the next step until that step is there. He doesn't like to do the "if.... then...." statements. He'd rather know and then go from there. It helps to prevent disappointment and depressions if things go backward rather than improve. We can understand that, So, we are still waiting to find out what happens "if..." BUT he is saying, even if reluctantly, that if this CT comes back the way we think it will- showing nothing just like the one right after the 3rd chemo cycle- then he will declare the path to remission. After that, Jeff will need to have blood work and see the doctor every 3 months for a year or two. Then it will go to every 6 months and eventually every year.

 

keep the prayers coming- we want that definate remission diagnosis so we can work on the next step.

So, good news- getting very close to remission diagnosis. Bad news- Jeff had another bad recovery period. the not sure- still have more to go until we can settle closer to our pre-cancer diagnosis lives.