April's follow ups

On Friday April 27, we followed up with another treatment with Oncology for treatment 7 of the IVIG. At treatment 6 our nurse drew some labs and checked them. Prior to treatment Jeff’s IgG level (normal 400-700) was 315. On March 30 the level was up to 939. Dr. H is happy with those and told us that we didn’t have to do anymore.  I am SO glad. Because the last CT scan (in January) was good, he has to have a repeat of CT for follow in July and then see the doctor. No blood work or treatments until the CT scan! Whoo Hoo!! Now we get to remove the Power Port and return to normal! Hopefully no more need for treatments from there for a very long time.

An April 16, he had a follow up with infectious disease. Unfortunately, things were not as well as we had hoped there. His cryptococcal titer was still 512- the same as January. We were hoping for a result in the double digits. So, he has increased his meds with that and we will do a titer again the beginning of June. Because he is doing well otherwise and feeling good we don’t have to actually see her until SEPTEMBER! We will do follow up after the blood work via the phone.

So, blood work for the titer in June, blood work to follow with his liver functions because of the meds every other month (we’ve just been doing that with oncology with the IVIG for the last few months and everything is fine.), a CT scan in July and then a follow up apt in July and September.  Things are looking good!

Of course, there are always other things going on around here though with the 4 kids.

Faith has her first Communion on Saturday May 5 and Clinton has Confirmation on Sunday May 13. Please keep both of them in your prayers as they make these important Sacraments. 

Thanks to all of you for all of your prayers through our difficult 2011.

Elizabeth and Jeff.